Service delivery

1. Identify potential registry participants and patient/parent recruitment.
2. Access hospital records for the purposes of clinical data extraction.
3. Identify information needs and ensure appropriate timely collection of high quality data and data entry, in accordance with registry and hospital policy.
4. Facilitate the assessment of quality of medical data capture and enhance data quality.
5. Act as an expert information source for registry data in your designated hospitals.
6. Assist in the compilation of summary data reports, preparation of registry documentation, standard operating procedures etc.
7. Assist in the preparation of annual CF patient census.
8. Work with partners to support the maintenance of an existing IT system.
9. Identifying opportunities for work process improvement, initiating and management of steps to achieve improvement.
10. Comply with the registry’s data protection policies.
11. Contribute to the dissemination of information and research findings. 
12. Report issues or problems to the management team.
13. Assist in other reasonable tasks commensurate with the post.

Collaborative working

1. Develop good working relationships with CF team members across different disciplines.
2. Liaise with relevant stakeholders, software developers and research investigators and collaborators as appropriate.

Core competencies

1. Read, write and speak fluent English
2. Ability to interpret medical notes/terms.
3. Excellent attention to detail.
4. Excellent communication and people-skills.
5. Ability to network and build and maintain relationships.
6. Ability to working both independently, autonomously and as part of a collaborative team
7. Excellent understanding of the confidential nature of this work and in particular, the right of patients to confidentiality.
8. Ability to develop plans and execute them effectively.
9. Ability to multi-task.
10. Ability to develop and set standards in line with organisational objectives.

The post-holder will be based at UCD Belfield, Dublin 4. Travel to Dublin and other Irish hospitals will be required (80%).   A current driver’s license is preferable but not essential.  Some working from home may be allowed depending upon the tasks being undertaking.